Dr. Newburger, who was not involved in the UK report, called it a “small but important study” that “adds new information to the knowledge gap about the long-term effects of MIS-C”.
They and the authors themselves noted that the results were limited because the children in the study were not compared with a control group of children without MIS-C or those with other diseases. For example, it is unclear whether her emotional problems and muscle weakness were the result of the syndrome, the process of being hospitalized for an illness, or other stressors during that time. “Mental health and physical condition affected children and adolescents in general during the pandemic,” said Dr. Newburger.
Dr. Srinivas Murthy, an associate professor of pediatrics at the University of British Columbia who was not involved in the new study, said it may be difficult to figure out which residual problems were directly due to the syndrome and which could result from critical illness. He said the fact that some of the children still had problems with muscle weakness and stamina could bring important lessons as such problems may require different types of care, including “post-hospital rehabilitation options.”
Dr. Penner said the Great Ormond Street Hospital team had made changes to the way they treat children hospitalized with the syndrome since the fall because they recognized “how badly their muscles are initially affected and how much they are tired and these children are weakened. “
In the hospital, for example, “it is extremely difficult for these children to just go from bed to the bathroom,” he said.
The hospital is now more focused on providing hospitalized physiotherapy and working with musculoskeletal therapists to the children, sending them home with a customized rehabilitation plan linked to an app.
“We also involved our occupational therapists and developed a once-a-month fatigue program where parents dial in for a group session,” said Dr. Jerk. “I think the main message we are giving them is to avoid this boom-and-bust cycle where the kids try to do the things they used to do at full speed and then kind of crash afterwards – as opposed to a gradual increase in activity back to its normal state. “